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Stickin’ my neck out – Part 1
I will have to keep repeating myself and trying to reach as many people as I can with the hopes that you all start to ask the same questions that I have been asking. Given the illogical data from the...
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Is our state allowing clinical trials on our most vulnerable citizens without...
Human Subjects Research being done on our most vulnerable citizens with no consent or ethical review. Senator Adam Kline is proposing legislation, again, which is an experiment on our most vulnerable...
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The Good, The Bad, The Economy
(Used with permission from author) When ‘De-institutionalization’ Goes Overboard Forcing the lowest functioning “into the community” is inexcusable Published on October 29, 2012 by Louis Putterman,...
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Seattle Times “Opinion”
I want to be hopeful but am afraid that nothing will change. Even though The Seattle Times published an article by Maureen O’Hagan entitled ” State ignoring abuse at group homes “ and The Seattle...
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Social Circles, Segregation and Disabilities
The social life of a person with intellectual disabilities is often studied and looked at only from one variable—that of interacting with others who have or do not have an intellectual disabilities....
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Integrity – legislation passed based on false information
Our state saw some devastating legislation passed in 2011 in Senate Bill 5459: One man died from negligence – there was laundry detergent stored in a milk carton, left on the counter and this man, who...
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Washington State Discriminates against youth with DD
Our state has passed legislation into law which discriminates against our youth with developmental disabilities who have high support needs – look at the facts – 42.3 % of the documented cases...
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Self Advocacy and The Arc of King County
“You do not have my permission to use my picture or any image from our publications, website, blogs or Facebook. Sylvia Fuerstenburg (Executive Director, The Arc of King County) given the above...
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Public funds used to discriminate – The Arc of King County
There has been a long-standing issue with regards to advocacy by The Arc of King County. The Arc of King County has a contract with King County Department of Community and Human Services,...
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Pilot Program Promising
Comprehensive, coordinated and cost-effective care – this is not impossible! Children’s Comprehensive Care Clinic is a pilot program in Texas which is showing promise. In Washington, we could expand...
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Let Your Voice Be Heard
The National Council on Disability (NCD) is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and...
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Entitlement?
We hear over and over that the Intermediate Care Facility for those with Intellectual Disabilities (ICF/ID) is an entitlement – but what does this mean in real life? One would think that if something...
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It’s a beautiful day in the neighborhood!
Today was a wonderful day in the neighborhood. I have been volunteering frequently in the community gardens at my son’s supported community. As I spend more and more time on campus I see more...
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Scattered, dispersed housing = Community?
A letter from the National Council on Disability (NCD) was published urging the US Housing and Urban Development (HUD) to swiftly comply with the US Supreme Court Decision of Olmstead. This is great –...
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Sno-Cones at 3:30!
Wow – summer finally started in the Seattle area today. I was at my son’s supportive community and they decided to pull out the sno-cone maker machine – talk about bees swarming to honey! This treat...
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Fact or Fiction?
Personally, I do not favor one type of environment over another as long as the person has choice and they and their families understand the issues and the person is safe. It is for this reason that I...
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Closing Institutions
Many of our supportive communities are being destroyed. People are being evicted from their homes and dispersed to isolated housing in the name of “inclusion.” The reason this is happening is because...
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A Gym Membership?
Community members playing in the open field If you cared for a young man with autism and moderate intellectual disability with the following other issues, would you consider a gym membership as an...
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Where is the choice? Where is the person-centered care?
The historic Olmstead Decision “affirmed that the ADA requires states to provide services for people with disabilities in the “”most integrative setting appropriate” and that states are obligated to...
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Olmstead Violation in Washington State
Washington State passed a law in 2011 which prohibits youth 21 and under from accessing needed supports in the ICF/ID. This law is in direct conflict with Olmstead. When I brought up the issues of...
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